NS has finally come out of hospital, he's been out two weeks and he's a very poorly man indeed. There are five stages of kidney failure, five being in need of a transplant. When he came out we were told he was at stage three and he had to work hard to look after himself not to progress further up the scale but yesterday we were told that the doctors now think he could be end of stage four going into a stage five which is very shocking news. He will find out more a week tomorrow when he sees his consultant.
I'm not sure if I've said before that Callum has been under a consultant for scoliosis for the last eighteen months.
When we first saw him the twist in Cals spine was 55°, unfortunately it has increases to 75°. It has increased by 10° just in the last six months. The condition becomes life threatening at 90° so the hospital has decided that he needs to have an operation to have a metal rod put in his back. The waiting list is four to six months but by the sounds of things they are saying that they want to do it sooner rather than later so we are waiting for a date.
He's not happy, this was his worse scenario, he was hoping it wouldn't twist anymore and I think has been in denial since he was diagnosed. We can't talk about the operation at all, he wants to know nothing about it. It doesn't help that it's not going to happen at our local hospital but at one about 40 miles away. So we have to sort out me staying with Cal, Malc traveling to and fro alongside sorting out the dogs and younger boys!
I'm really dreading it but we'll take it a day at a time.
Eden's at a party tonight, we will be picking her up at midnight along with three of her friends. We will be dropping one off at his home and the other two are staying here the night.
We've had her friends here for the last two nights so this is night number three with extra people here. I'm beginning to think we run a hotel!
The only reason I have time to post tonight is because we have another hour to wait before we leave and I daren't fall asleep otherwise I will not wake up and poor Eden will be waiting with her friends for us!
Anyway I think that has bought you up to date with all the basics that have been happening.
Hopefully it won't be so long before I'm back again!
Errrrr I'm not sure you have room for a horse in your back garden!
ReplyDeletePoor Callum, I'm not surprise he doesn't want to think about it, lets hope they do it soon.
Our eldest has a similar problem but not so drastic, it just makes her back ache if she stands for too long or sits wrong.
Take care
Definitely not Sue! Cal is lucky he has no pain whatsoever and it doesn't stop him doing anything. It might be better if it did hurt then it would make the operation seem worth having to stop the pain. He's getting there slowly! We can go at his pace. It's his operation to deal with. It's a shame he has to deal with it but we're lucky that the procedure is usually really successful x
ReplyDeletePoor Callum! I knwo a couple of people with the same thing and both are in their 50's now so I'm sure the op will have an amazing effect and stop pain in the future. Fingers crossed an appointment comes through soon. You know how hard we've had to fight to just get OB an appointment at GOSH, so push as hard as you have to! Horses are bloody expensive. If Trigger was costing me anything other than food and a bit of hoof trimming, he'd have to go! xx
ReplyDeleteIt is a waiting game at the moment Em.
ReplyDeleteI really don't think we could afford a horse! If he wants to be around them that much he can go and volunteer at a local stables!
So sorry to hear about Callum. Hopefully he'll get an op date really soon as it seems to be progressing fast, and he'll notice the benefit once its done. You are certainly kept busy with your brood. I'm trying to think back to mine and all the different things happening simultaneously and I sometimes wonder how we ever survived it all. At one time I had 4 of them all in different schools and I can tell you I prayed really hard every year that sports days and parents evenings etc. didn't clash especially as DH worked in London then and was out really early every morning and not back until after 7pm. Luckily a clash only happened once and big sister stood in for me at the event I couldn't attend.
ReplyDeleteThere's certainly something always going on Helen. I say it keeps me young!!
ReplyDeletePoor Callum, I'm afraid ai don't know much about scoliosis but I have heard it can be so painful. I hope the poor lad gets an appointment soon and can get it over with and move forward. A hard time for you all xx
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